Matthew's One Month Update

Matthew a Canadian CCSVI patient, talks about his one-month update on how he’s doing post-liberation. Although we didn’t see Matthew ourselves, we do see many patients from Canada each week. His video stresses the importance for follow up care.  We recommend that patients have a follow up doppler exam one month, six months and one year after surgery.

CCSVI Cause célèbre

Celebrity spokespersons for diseases and degenerative conditions can draw widespread recognition and sympathy.  To date, no celebrity has come forward to support the global CCSVI community and the liberation procedure suggesting hope for millions of people suffering from multiple sclerosis.  Certainly many famous people in history have lived with M.S. but how important do you think it is for a famous person to step forward to advance the cause and to put a “face,” on the movement that most people know and trust. It’s an interesting thought.  What do you think?

Dr. Marian Simka from Poland discusses CCSVI

From time to time we want to share patient and health care professionals testimonials from around the world.  Her Dr. Marian Simka talks about his observations regarding CCSVI and the liberation procedures.

An objective look at CCSVI

As many of you know, nearly every scientific advancement in history has met with some controversy. Some more than others. CCSVI is no exception. Despite overwhelming patient anecdotal evidence the procedure is consistently challenged in the mainstream medical community. To legitimize Dr. Zamboni’s hypothesis, several international studies are underway (they themselves subject to controversy as several of the researches have disclosed that they benefit financially from some of the largest drug companies). (more…)

Using humor for a serious subject

Stacy, A new friend we met on Facebook is taking a unique and humorous approach to dealing with her condition.  She has created a t-shirt called “got brain drain.” Restricted blood flow in Multiple Sclerosis patients is thought to be the leading cause for the condition CCSVI.  She is donating a portion of the sales from the t-shirts to the CCSVI Alliance as well as raising money to help with her own aftercare. Humor in the face of a daunting health condition is both inspiring and uplifting.

Nigel's post liberation story

[re-printed with permission from his post on CCSVI Locator]

“This is my first post and I should have commented earlier but I have never done this kinda stuff before, so on Feb 16 it 3 months since I had my “Liberation Treatment” at the Rhode Island Vascular Institute. I went there not knowing if I had any stenosis at all but I have a sister with MS (2 years younger) and she was able to get a MRV and hers showed narrowing. So my wife and I went to Rhode Island I got tested and sure enough I had blockages in all 3 areas (more…)