Matthew's One Month Update

Matthew a Canadian CCSVI patient, talks about his one-month update on how he’s doing post-liberation. Although we didn’t see Matthew ourselves, we do see many patients from Canada each week. His video stresses the importance for follow up care.  We recommend that patients have a follow up doppler exam one month, six months and one year after surgery.

Using humor for a serious subject

Stacy, A new friend we met on Facebook is taking a unique and humorous approach to dealing with her condition.  She has created a t-shirt called “got brain drain.” Restricted blood flow in Multiple Sclerosis patients is thought to be the leading cause for the condition CCSVI.  She is donating a portion of the sales from the t-shirts to the CCSVI Alliance as well as raising money to help with her own aftercare. Humor in the face of a daunting health condition is both inspiring and uplifting.

Nigel's post liberation story

[re-printed with permission from his post on CCSVI Locator]

“This is my first post and I should have commented earlier but I have never done this kinda stuff before, so on Feb 16 it 3 months since I had my “Liberation Treatment” at the Rhode Island Vascular Institute. I went there not knowing if I had any stenosis at all but I have a sister with MS (2 years younger) and she was able to get a MRV and hers showed narrowing. So my wife and I went to Rhode Island I got tested and sure enough I had blockages in all 3 areas (more…)

CCSVI Screening in Action

Here, Nicole Feigenbutz demonstrates a CCSVI screening.  This footage was taken for use as b-roll for news coverage and it shows the method used to look for the condition.

We screen patients from all over the world for candidacy for the liberation procedure. Interesting enough, the majority of our patients come to us from Canada.

Chronic Cerebrospinal Venous Insufficiency is theoretically the cause of Multiple Sclerosis and its associated symptoms.

The power of video

As we’ve been growing our practice and our online presence, we are of course thinking of how we can best communicate the power of the CCSVI liberation procedure.  We realized that we need more photos and we really need patient testimonials.  If you are reading this and you are a patient or the loved one of a patient, it’s important to document your journey.  Not just so that we can put it up on our website but because video documenting your journey can be a powerful and moving experience.  We’ve watched videos of people just like you from around the world that have found us sitting at our computers weeping with the joy of watching hope transform into reality.